Pamela Rush-Negri

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research public policy care services education non-profit organizations als amyotrophic lateral sclerosis neurodegenerative disease support services local clinics advocacy fundraising caregiver resources patient education clinical trials treatment options symptom management living with als veteran support community engagement ice bucket challenge donations healthcare access biomarker research genetic testing telehealth services patient empowerment local support groups resource directories medical referrals patient resources federal funding state advocacy disability rights lifespan concerns care plans care coordination social support emotional health quality of life community outreach scientific research medical professionals vulnerable populations empowerment programs advocacy training informational webinars insurance information patient rights family support services awareness campaigns mailing lists nonprofit organization als research patient support assistive technology multidisciplinary care fundraising events healthcare resources caregiver support clinical care centers partnerships research collaborations equipment loans patient services social connection als focus survey treatment centers financial accountability transparency compassionate care integrity urgency military veterans support healthcare navigation independent living solutions nonprofit organization management fund-raising health care health wellness & fitness hospital & health care