Nicole Millis

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non-profit organizations rare diseases advocacy health policy support services patient resources genetic disorders healthcare access collaborative research a-z support directory national strategic action plan health literacy rva partners community engagement education programs healthcare equity clinical trials rare disease summit healthcare navigation person-centred care public health rare disease awareness medical guidelines research partnerships industry collaboration patient advocacy mental health support translational research genomic medicine disability inclusion family support orphan drugs clinical genetics government relations rare disease representation mentorship programs disability services health information resources educational workshops stakeholder collaboration data registries national rare disease plan systemic advocacy policy recommendations community initiatives patient-centered outcomes genetic counselling healthcare disparities pharmaceutical partnerships telehealth services nonprofit organization management health care health wellness & fitness hospital & health care